Invisible Disabilities Week

It’s invisible disabilities week.. a week focused on making those who feel invisible.. visible. A week to highlight and spread awareness on battles most never face or see. I am a proud member of the invisible disability club..I personally have been diagnosed with multiple invisible disorders or medically deemed disabilities…most of these I didn’t even know existed until they resided inside of my body and brain..most I can’t even pronounce. To be apart of this club.. you have to develop some pretty tough skin..you have to let the phrase..you look fine.. just roll off your back. You have to look past when others question.. are your struggles and health fights truly there or do you just need attention?? Sadly in life.. seeing is believing.. and for our club this makes the fight a little harder. You deal with some backlash.. when one day you can do things and then the next you can’t get out of bed.. you cancel a lot and at times lose friends and family because in their opinion you can’t just let it go and move on..they question why you are stuck on this and can’t move forward.. but the thing is this.. this is our life.. there is no moving past what is dwelling inside.. as much as we would love to not be stuck here..it isn’t our choice..as much as we hate to have our health dictate our lives.. it does..we have to listen to our bodies and accept a life and road we never wanted to travel on. Sometimes when you are stuck in the fog.. you get focused on your personal fights and forget to look around and realize there are others out there living this life just as you are. You may not have the same diagnosis or your club membership card doesn’t look the same.. but none the less.. they are traveling a journey they never thought they would have too.. they are grieving the old them.. they are stuck in between the world that existed and now exists.. trying too navigate just how to make it minute to minute and salvage the old to combine with the new. My dear friend Kara belongs to this club..her life has been forever changed and most will never even realize to what magnitude. Kara has multiple chemical sensitivity.. the world she lived in was turned upside down.. it turned into a world that she couldn’t exist in for that world could lead to numerous setbacks.. hospitalizations and as scary as it sounds take her out of our world. Multiple chemical sensitivity (MCS) is her bodies reaction to all chemicals.. perfumes..products and lotions used on a daily basis by us all. It’s a disability that leads to overwhelming reactions to these products as well as smoke.. exhaust from cars and cleaning products. Being exposed to these items and environmental exposure to them..can compromise her health and immune system on multiple levels. Every outing.. every interaction with any human..any environment..impacts her health and triggers multiple symptoms. I can’t imagine the fear and anxiety attached to this struggle..giving your friend a hug can lead to a hospitalization and long road back to her baseline. Kara has always been the life of the party or any occasion.. her laugh alone sparks a chain reaction of endless smiles and laughter. Kara has always been one friend that is there for you in every single way..always present.. always excited to celebrate her family and friends. Kara has always been the most amazing and influential teacher.. loved by her students and colleagues..always involved and compassionate about those she felt honored to teach and work with .. she has won countless awards and been praised for her amazing role in her students lives. Kara is a hardcore athlete..not many want to face her on the golf course. These things that have defined her and enriched her life.. now have taken a toll on her health and forced her to walk away from a huge part of her heart and being. Kara is still that amazing teacher.. she teaches me daily how to get up and deal with a shitty hand.. how to make the most of each day and to always look on the bright side. Kara is still that hardcore athlete.. she battles.. braves snd beats this disability every single day! At times on my own journey I have felt alone.. misunderstood.. isolated.. but I could always meet up with a friend and work through it. Kara however does not have this luxury..a freshly showered friend or the detergent on their clothes could wipe her out and force her to lose days. Going to the grocery store for Kara is like stepping into a war zone.. I can’t imagine needing a gallon of milk and the fear and anxiety that is attached to something most of us don’t even think twice about. The grocery store.. the gas station.. school events could literally make it unable for her to breathe. I may never understand all she faces or feels.. but I see her..we all are very capable of seeing Kara and seeing others who look great but internally fight a war we never will. For a long time I just saw life through the eyes of my disability.. I couldn’t see past the fog to get another’s walk. So today..this week.. the week to promote invisible disability awareness and education..I find myself looking outside of the fog to try harder to understand and support those that feel alone.. invisible and exhausted from this life long battle. We may not have joined this club for the same reason..but everyone deserves to be supported and encouraged with all they face. Kara is still the beautiful.. strong.. hilarious friend she has always been.. it is my responsibility to take the precautions to bring the party to her. It takes a second to educate ourselves to give those we love a sense of security and stability. It takes a second to see another.. to see the road laid out before them and to make that road a easier road to travel! I will never forget the friend that found her way to my hospital bed.. who filled the room with laughter and light when I didn’t even feel like laughing or opening my eyes. I know we both didn’t choose this.. I know we both wish life didn’t lead us here.. but my friend..I am happy to be in this club with you.. I am happy to get the chance to watch you climb and conquer..and I feel blessed every time you give me a hug.. for I know what that could do to you..true friendship.. one sacrificing themselves just to make sure you know you are loved and not alone. Let’s look past ourselves and our battles to reach out to all those that are trying to just get through the day as best as they can! Invisible… visible.. disabled..not disabled.. recovered.. remission.. actively fighting..we all can take the time and steps to acknowledge.. empathize..include and support those that are trying to accept changes and regain independence and better days! Hey Kara.. you got this..thank you for once again teaching me about your journey and thank you even more for letting me be apart of your beautiful story! And for the record seeing is not believing..believing is seeing! 💚

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s